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Related to: Children and Young People, Ageing Population, People with Multiple Needs, Ill Health and Disability, Mental Health and Illness, Safeguarding Children and Young People, Older People, Physical and Mobility Impairments, Safeguarding Adults, Sensory Impairments, Adult Social Care, Child Health and Wellbeing Survey

Key Facts:

  • The 2011 Census showed that in Bath & North East Somerset there were 17,585 people providing unpaid care and support (10% of 2011 population)
  • According to the 2011 Census, 1.09% of children aged 15 and under in B&NES were providing some (1+ hours) unpaid care per week and 3.0% of young people aged 16-24.
  • In 2012 there were 155 young carers registered with the Young Carers Service in this area with many more thought to be unrecorded
  • In a survey of school pupils 23% of respondents and 12% of primary school respondents said they cared for family members after school on the day before the survey
  • Personal Social Services User Survey of Carers in England 2009-10 (B&NES results) - The majority of respondents are satisfied with the support provided by social services

Definitions

Carers are anybody who provides unpaid support and care to a relative, child, partner, other family member, neighbour or friend, who, due to a disability, physical or mental illness, addiction or frailty is unable to manage without help. They provide personal care, practical help and emotional support.

Information on groups and activities in Bath and North East Somerset open to adults who are socially isolated, carers, affected by domestic abuse, mental health issues, substance misuse or homelessness can be found in the Hope Guide

What does the data say?

UK

There are approximately 6 million unpaid carers in England and Wales, 1 but this is not a static population and nationally we know there are about 2 million people who take on new caring responsibility every year. Research shows that despite the extremely important and difficult job done by carers and the huge economic savings they contribute to the NHS (around £87 billion a year), carers often experience financial difficulties and more ill-health than other members of the population.

It is estimated that unpaid carers provide up to 70% of care in the community and save the economy an estimated £87 billion a year.2

As people live longer and survive with complex health conditions, the prevalence of physical disability, illness, dementia, and so on, increases, the number of people in the community needing care is inevitably going to increase. The Government is estimating that there will be a 30% increase in the number of people with a caring role by 2026, rising to 50% by 2041. 3

Research suggests that Carers are more likely than the general population to suffer from health problems, and it is estimated that nearly one in four Carers themselves have health problems or disabilities.4

The 2001 Census of Population reported that of the 6 million people in the UK who were providing unpaid care two-thirds of these Carers were of working age, combining paid work and care. 58% of Carers are women and the over 65s account for around a third of all Carers providing more than 50 hours of care a week. 5

South West

In 2011 there were 570,298 carers in the South West region of England (11% of the region’s population compared with 10% across England and Wales as a whole). 6

6% of men and 24% of women aged 50-64 were carers in 2001. 7

Two fifths of carers aged 75 or over provided 50 or more hours care per week in 2001.

Carers who provided 20 or more hours of care per week (30% of all carers in the region) were reported to be more likely to:

  • Live in social housing
  • Live in a household with no working adult
  • Live in a household with a person with a limiting long-term illness (LLTI) 8

Demand for care in the South West Region is growing

Between 2008 and 2030 it is expected that in the region:

  • The number of people aged 85+ will more than double to 308,100, increasing from 2.8% of the population to 4.9% (compared with an increase from 2.2% to 3.9% in England as a whole)
  • The number of people with a limiting long-term illness (LLTI) will increase by two fifths, from almost 946,000 to over 1.3 million. 9

More than twice as many people aged 65 or over will have dementia: over 118,000 people

The number of carers will increase by over 114,000 or 22%, compared with 15% in England as a whole. 10

Bath and North East Somerset

Number of carers - The 2011 Census showed that in Bath & North East Somerset there were 17,585 people providing unpaid care and support (10% of 2011 population), 71% of whom provide between 1-19 hours or care, 11% of who provide 20-49 hours per week and 18% of who provide more than 50 hours’ care per week. This amounts to just under 3% of the B&NES population in 2011 providing greater than 20 hours unpaid care per week. 11This is an increase of 1,461 people providing unpaid care in B&NES from 2001 12

In 2011, 58.4% of unpaid carers were female (over 10,000 people). The largest difference was in the 50-64 age group, where ~1,300 more females than males were providing some unpaid care. In B&NES, there was no age range where more men provided unpaid care in 2011.

The census also found that there were 323 carers aged 0-15 in B&NES in 2011, an increase of 27 since 2001. The majority (81%) were providing 1 to 19 hours care, with 5.6% providing over 50 hours of care per week.

11% of the adult population have self-defined as a carer through the Voicebox 15 survey 13

There are 1462 carers are known to the Council 14

Health & economic activity of carers - It is clear from the 2011 census that the general health (self-reported) of carers deteriorates incrementally with the increasing hours of care provided. For those providing 1-19 hours of unpaid care per week, 3.1% reported their health as bad or very bad. This increased to 10.4% for those providing over 50 hours per week.

57% of female adult carers and 61.7% of male adult carers reported that they were economically active. 47.7% of adult male carers were employed or self-employed full time, compared to 24.3% of females. 15

Carers of mental health service users (with assessments) -  In B&NES in 2012/13 (financial year) there were 52.2 adult carers of mental health service users aged 18-64 (assessed during the year) per 100,000 of the 18+ population, this is lower than the England rate of 68.5 per per 100,000 of the 18+ population. 16

National Adult Social Care Intelligence Service (NASCIS) reports 17 - The National Adult Social Care Intelligence Service (NASCIS) is a single national resource of social care information for England that generates reports analysing social care data in order to help aid planning, performance management and service improvement.  18

The reports compare Bath and North East Somerset’s Adult Social Care Services in the context of data for 15 comparable councils. Comparable councils are selected according to the Chartered Institute of Public Finance and Accountancy (CIPFA) Nearest Neighbour Model, which identifies similarities between authorities based upon a range of socio-economic indicators. 19

Age of carers (local adult care data) 20 - The total numbers of carers per 100,000 of the population with completed assessments or reviews, (2012-13) in Bath and North East Somerset in the different age groups is similar to the comparator group and England:

  • Age 18 to 64 – approximately 600 per 100,000 of the population.
  • Age 64 to 64 - approximately 1,300 per 100,000 of the population
  • Age 75 and over - approximately 2,400 per 100,000 of the population

carers - carers per 100000 population bar graph - nascis 2013 reports

Figure 1: Total number of carers per 100,000 population with completed assessments or reviews, during the year, by age group of the carer, 2012-13 21

 

The proportion of carers with completed assessments or reviews during 2012-13, in Bath and North East Somerset in different age groups is similar to the comparator group and England:

  • Age 18 to 64 – approximately 52% of carers with completed assessments or reviews
  • Age 64 to 64 - approximately 18% of carers with completed assessments or reviews
  • Age 75 and over - approximately 30% of carers with completed assessments or reviews

Types of people being cared for- categorised by dominate health issue 22

In terms of the types of people being cared for, categorised by dominate health issue by carers with completed assessments or reviews during 2012-13, in Bath and North East Somerset:

  • Physical disability– this client group makes up approximately 75% of the people cared for by carers, more than the comparator group (approx. 60%) and England (approx. 68%).
  • Learning disability – this client group makes up approximately 8% of the people cared for by carers, less than the comparator group (approx. 10%) and England (approx. 12%).
  • Mental health issues – this client group makes up approximately 18% of the people cared for by carers, less than the comparator group (approx. 28%) and England (approx. 20%).
  • Substance misuse issues –  this client group makes up approximately  less than 1% of the people cared for by carers, and this is the case in the comparator group and England.
  • Other vulnerable people – this client group makes up approximately 1% of the people cared for by carers, less than the comparator group (approx. 5%) and England (approx. 3%).

Young carers in Bath and North East Somerset

According to the 2011 Census 23:

  • 1.09% of children aged 15 and under in B&NES were providing some (1+ hours) unpaid care per week, similar to the South West (1.21%) and England (1.11%).
  • 3.0% of young people aged 16-24 in B&NES were providing some (1+ hours) unpaid care per week, significantly lower than the South West (4.2%) and England (4.8%).
  • 0.21% of children aged 15 and under in B&NES were providing considerable (20+ hours) unpaid care per week, the same as the South West and England.
  • 0.6% of young people aged 16-24 in B&NES were providing considerable (20+ hours) unpaid care per week, significantly lower than the South West (4.2%) and England (1.0%).

In 2012 there were 155 young carers registered with the Young Carers Service in this area (more thought to be unrecorded) 24 This is 0.52% of the 0-15 year population compared with 2.1% estimate nationally. 25

This could represent a lack of child carer identification within Bath and North East Somerset.

In a survey of school pupils 23% of respondents and 12% of primary school respondents said they cared for family members after school on the day before the survey. 26 This indicates a gap between carer’s and using services.

Numbers of carers claiming Carers Allowance in B&NES have grown from just over 800 to just over 1000 from February 2009 to February 2012. The data shows a small but consistent growth by quarter over 3 years and is projected to continue to increase. 27

What does the community say?

For the results of the Child Health and Wellbeing Survey see Child Health and Wellbeing Survey section.

Personal Social Services user Survey of Carers

Personal Social Services user Survey of Carers of people in receipt of local authority support 2012-13 contacted a ranomly selected 485 carers in Bath and North East Somerset28.

  •  36% of respondents or the person they care for had received no support in the previous 12 months, 49% were satisfied with support that they had received (77% of all those receiving support).
  • 5% had used support services to take a break from caring lasting more than 24 hours, down from 26% in 2009/10.
  • 64% of carers felt they didn’t have enough to time do things that they enjoy in their life.
  • 36% of carers felt that they were not always looking after themselves well enough and 50% feel that they do not have sufficient social networks.
  • 12% felt that there caring responsibilities kept them from paid employment, whilst the majority (64% were retired). 

Care Forum meeting, 1st July 2009

One of the main local challenges continues to be engaging with carers who are traditionally described as ‘hard to reach’, whether because they belong to an ethnic minority group, are living in secluded rural areas of Bath & North East Somerset or have never had any contact with social services in relation to their care needs. In order to attempt to reach these ‘hidden’ groups of carers there remains a strong need to work in partnership with GP surgeries and hospitals in order to access carers at ‘first diagnosis’ of the cared-for person. 29

Supporting carers particularly if more services are being delivered at home and more vulnerable people are being helped in the community continues to be a key concern to the public.30

Are we meeting the needs?

In June 2008 the Government published a new National Strategy for Carers- Carers at the heart of 21st century families and communities “ A caring system on your side. A life of your own.” This National Strategy provides a ten-year programme which aims to ensure the support services that carers need are in place by 2018. This is linked to wider health and social care reforms which recognise the increasingly vital role that carers play in society. Locally, it is recognised that much needs to be done to ensure carers across Bath and North East Somerset are identified and are signposted to appropriate sources of support. 31

NACIS’s  Measures from the Adult Social Care Outcomes Framework (ASCOF)Comparator Report 2012-13 32

The report shows measures from the Adult Social Care Outcomes Framework (ASCOF) for Bath and North East Somerset (908) in the context of data for15 comparable councils.Comparable councils are selected according to the Chartered Institute of Public Finance and Accountancy (CIPFA) Nearest Neighbour Model, which identifies similarities between authorities based upon a range of socio-economic indicators.

The carer-reported quality of life score gives an overarching view of the quality of life of carers based on outcomes identified through research by the Personal Social Services Research Unit. This is the only current measure related to quality of life for carers available, and supports a number of the most important outcomes identified by carers themselves to which adult social care contributes.

The Carer reported quality life score in 2012-13 for Bath and North East Somerset was 8.5 out of 10, similar to the compartor group (8.3) and England (8.1).

 

Overall satisfaction with services of carers of people using adult social care is directly linked to a positive experience of care and support. Analysis of user surveys suggests that reported satisfaction with services is a good predictor of the overall experience of services and quality. This is expressed as the percentage of carers who are satisfied.

In 2012-13 47.6% of carers were satisfied with social services, this slightly higher than the comparator group (45.1%) and England (42.7%).

Level of support - In 2012-13 in B&NES 52% of careers looking after people over 65 years received services beyond just information, where as 48% received information only.  The level of support in B&NES in terms of those receiving services beyond just information in 2012-13 was higher than the comparator group (31%) and England (45%). 33

Included or consulted in discussion about the person they care for - The report states that 70.4% of carers in Bath and North East Somerset have reported that they have been included or consulted in discussion about the person they care for by both the NHS and social care, in 2012/13. This is however; lower than the comparator group (74.6%) and England (72.9%)

 

 

  • 1. ONS (2011) 2011 Census: Health and provision of unpaid care, local authorities in England and Wales, Table KS301EW
  • 2. Bath and North East Somerset Council and NHS (September 2011) Clinical Commissioning Committee Summary Sheet: Carers – Update on Carers Support Services and Priorities
  • 3. Bath and North East Somerset Council and NHS (September 2011) Clinical Commissioning Committee Summary Sheet: Carers – Update on Carers Support Services and Priorities
  • 4. Bath and North East Somerset Council and NHS (September 2011) Clinical Commissioning Committee Summary Sheet: Carers – Update on Carers Support Services and Priorities
  • 5. Bath and North East Somerset Council and NHS (September 2011) Clinical Commissioning Committee Summary Sheet: Carers – Update on Carers Support Services and Priorities
  • 6. ONS (2011) 2011 Census: Health and provision of unpaid care, local authorities in England and Wales, Table KS301EW
  • 7. Bath and North East Somerset Council and NHS (September 2011) Clinical Commissioning Committee Summary Sheet: Carers – Update on Carers Support Services and Priorities
  • 8. Bath and North East Somerset Council and NHS (September 2011) Clinical Commissioning Committee Summary Sheet: Carers – Update on Carers Support Services and Priorities
  • 9. Bath and North East Somerset Council and NHS (September 2011) Clinical Commissioning Committee Summary Sheet: Carers – Update on Carers Support Services and Priorities
  • 10. Bath and North East Somerset Council and NHS (September 2011) Clinical Commissioning Committee Summary Sheet: Carers – Update on Carers Support Services and Priorities
  • 11. ONS (2011) 2011 Census: Health and provision of unpaid care, local authorities in England and Wales, Table KS301EW
  • 12. ONS 2001 Census: Health and provision of unpaid care
  • 13. Bath and North East Somerset (2009) Voicebox 15, in-house analysis
  • 14. Bath and North East Somerset Council (2011) Social care in-house data
  • 15. ONS (2011) 2011 Census
  • 16. Public Health England (2014) Bath and North East Somerset Clinical Commissioning Group, Community Mental Health Profile 2014, http://www.nepho.org.uk/pdfs/cmhp/E38000009.pdf (viewed 21.11.14)
  • 17. Adult Social Care Statistics Team, National Adult Social Care Intelligence Service (NASCIS) (17th December 2013) Referrals, Assessments and Packages of Care (RAP) Comparator Report 2012-13, Bath and North East Somerset (908), Health & Social Care Information Centre
  • 18. Health & Social Care Information Centre (2013) National Adult Social Care Intelligence Service (NASCIS), http://www.hscic.gov.uk/nascis (viewed on 21/01/14)
  • 19. Adult Social Care Statistics Team, National Adult Social Care Intelligence Service (NASCIS) (10th July 2013), Measures from the Outcomes Framework (ASCOF): Comparator Report 2012-13 Bath and North East Somerset (908), Health & Social Care Information Centre
  • 20. Adult Social Care Statistics Team, National Adult Social Care Intelligence Service (NASCIS) (17th December 2013) Referrals, Assessments and Packages of Care (RAP) Comparator Report 2012-13, Bath and North East Somerset (908), Health & Social Care Information Centre
  • 21. Adult Social Care Statistics Team, National Adult Social Care Intelligence Service (NASCIS) (17th December 2013) Referrals, Assessments and Packages of Care (RAP) Comparator Report 2012-13, Bath and North East Somerset (908), Health & Social Care Information Centre
  • 22. Adult Social Care Statistics Team, National Adult Social Care Intelligence Service (NASCIS) (17th December 2013) Referrals, Assessments and Packages of Care (RAP) Comparator Report 2012-13, Bath and North East Somerset (908), Health & Social Care Information Centre
  • 23. Public Health England (2014) Bath and North East Somerset, Children's and Young People's Mental Health and Wellbeing Profile and data, http://fingertips.phe.org.uk/profile-group/mental-health/profile/cypmh/data#gid/1938132752/pat/6/ati/102/page/9/par/E12000009/are/E06000022 
  • 24. Friends of Young Carer’s Bath and North East Somerset (January 2012) in-house data
  • 25. National youngcarers’ coalition (downloaded 13/3/2012) http://odi.dwp.gov.uk/docs/wor/rtc/rtc-consultation-nycc.pdf
  • 26. Young People in B&NES Schools (2011) The health related behaviour survey 2011, The school’s health education unit
  • 27. ONS Carers Allowance claimants data February 2012 (NOMIS download)
  • 28. Health and Social Care Information Centre (2013) Personal Social Services Survey of Adult Carers in England - 2012-13, Final report, Experimental statistics http://www.hscic.gov.uk/catalogue/PUB12630 (Accessed 22/05/14)
  • 29. Bath and North East Somerset Council and NHS (September 2011) Clinical Commissioning Committee Summary Sheet: Carers – Update on Carers Support Services and Priorities
  • 30. Right Care Best Value Public Consultation Feedback Report, Jan 2011
  • 31. Bath and North East Somerset Council (2010) Bath and North East Somerset Joint Adult Carers Commissioning Strategy 2010-2014 http://www.bathnes.gov.uk/sites/default/files/joint_carers_commissioning_strategy_2010-2014.pdf
  • 32. Adult Social Care Statistics Team, National Adult Social Care Intelligence Service (NASCIS) (17th December 2013) Measures from the Adult Social Care Outcomes Framework (ASCOF)Comparator Report 2012-13, Bath and North East Somerset (908), Health & Social Care Information Centre
  • 33. Adult Social Care Statistics Team, National Adult Social Care Intelligence Service (NASCIS) (17th December 2013) Older People Comparator Report 2012-13, Bath and North East Somerset (908), Health & Social Care Information Centre